The panel combined both California and national health IT expertise and featured Jonah Frolich, California Deputy Secretary for Health Information Technology; Alex Kam, Acting Director of the California Office of Health Information Integrity (OHIII); David Lansky, President and CEO of the Pacific Business Group on Health; John Mattison, M.D., Chief Medical Information Officer of Kaiser Permanente; Deven McGraw, CDT’s Health Privacy Project Director; and Julie Murchinson, Managing Director of Manatt Health Solutions. Leslie Harris, President and CEO of CDT, moderated a discussion that quickly became an active one among both panelists and attendees.via cdt.org
The focus was initially on California and a recent paper released by CalOHIII largely raising concerns about “secondary” uses of health data (the paper will be available online shortly, check back here for a link). Such uses are often cited as raising greater privacy concerns. Yet the use of data for secondary (beyond individual treatment) purposes – such as for quality measurement and comparative effectiveness research – are key to achieving greater health system reform, raising the question of whether they should be relegated to secondary status.