Health Affairs website. Two of the speakers that day were Lygeia Ricciardi and Jessie Gruman.
I read both articles (strange that An Accidental Tourist Finds Her Way In The Dangerous Land Of Serious Illness is open access while A National Action Plan To Support Consumer Engagement Via E-Health requires a subscription). The videos below from the briefing highlight the talks of Lygeia and Jessie. Lygiea points out how health IT and mobile technologies have created ideal conditions for the growth of patient engagement technologies. Jessie gives an overview of her compelling personal story and battle with cancer. She discusses how patient engagement is necessary to make the best use of care that is available to us.
Lygeia Ricciardi, Director, Office of Consumer eHealth, Office of the National Coordinator for Health IT, US Department of Health and Human Services, on A National Action Plan To Support Consumer Engagement Via E-Health
Jessie C. Gruman, "Narrative Matters" Author, and President, Center for Advancing Health, on An Accidental Tourist Finds Her Way In The Dangerous Land Of Serious Illness